Chiari…brain & spinal surgery…WHAT!

Podcast: Episode 2 is available (link below)

So what is Arnold Chiari Malformation...well, basically the brain is too big for the skull, therefore causing pressure and pain and many other symptoms…therefore needing brain & spinal decompression surgery

We’ve known for 12 years that my husband had this condition, but in the last year his symptoms have gotten worse. We went to see a neurologist in the beginning of 2020 who did another MRI…and in a whirlwind…we were meeting with a neurosurgeon…whose first words out of his mouth were that his chiari was SEVERE and surgery was needed (definitely took us by surprise)…he has also developed a syrinx in his spine (which is basically a cyst in his spinal column)…surgery will be soon…recovery will be long and possibly painful…but we know without doing this that symptoms could get worse possibly leading to paralysis or worse…